“You don’t have to change your mind to make someone feel heard”
Listen to a 5 minute podcast episode showing how doctors can make their patients feel heard without necessarily agreeing with them.
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Resources
Below are resources for making medicine and scientific research more transparent. Whether you are a patient or a researcher, I hope these are actionable and useful! If you have more resources to suggest, please reach out via my contact form.
Getting Started
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Recent Articles:
Featured resources:
01
For patients, Your Doctor
Check out Open Payments to see if your doctor received money from pharma. Keep in mind that receiving money is not inherently bad. (E.g. Pharma reps can pay for meals to treat office staff or pay a clinician to speak at an event.) However, this can help you initiate an open dialogue with your physician.
02
For patient advocates
I'm keeping my eye on these exciting companies and orgs who appear to be paving the way in patient-led research
03
Consent Forms
As a study participant, here are the questions I ask before signing a consent form. As someone who has written consent forms, these questions incorporate my experience on both sides of the participant-researcher relationship.
Coming soon: I will share a podcast recording of my "insider info" from running a research study and recruiting for multiple studies. If you would like me to speak on this topic (e.g. compensation, consent, data rights, etc), please reach out! This is my passion.
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