The Patient Scientist | Emily Harari

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Review Test Kits

Wanna give you the chance to send your questions in advance of a product review! Please comment or DM!

#bloodtest

Wanna give you the chance to send your questions in advance of a product review! Please comment or DM!

#bloodtest

Turns out your cats can give you “slow-drip meth” anxiety-inducing bacteria 🐱… thanks @stephenskolnick for mapping out my microbiome. You can join this study for free gut microbiome insights too. Watch my video and read my article (linked in bio) to learn more.

*this isn’t medical advice and none of this was sponsored by Stephen’s company. I just wanted to share the cool science.

#gutmicrobiome

Have you ever sequenced your gut microbiome?

Turns out your cats can give you “slow-drip meth” anxiety-inducing bacteria 🐱… thanks @stephenskolnick for mapping out my microbiome. You can join this study for free gut microbiome insights too. Watch my video and read my article (linked in bio) to learn more.

*this isn’t medical advice and none of this was sponsored by Stephen’s company. I just wanted to share the cool science.

#gutmicrobiome

Have you ever sequenced your gut microbiome?

It’s up! If you want to test your mitochondria and have been thinking about trying @mitometest , read this article on my Substack (linked in bio).

When I was considering the pricey test, I was struggling to find in-depth reviews online, so I hope this serves that need. Regardless, if you’re just looking for more confidence in evaluating all the test kits out there, this article was also written to help you make those decisions.

Folks who helped me out in the process of writing this:
@chrismasterjohn , @angiepeacockmsw , @brookesiem and a few others in the acknowledgments with whom I’m not connected on IG.

It’s up! If you want to test your mitochondria and have been thinking about trying @mitometest , read this article on my Substack (linked in bio).

When I was considering the pricey test, I was struggling to find in-depth reviews online, so I hope this serves that need. Regardless, if you’re just looking for more confidence in evaluating all the test kits out there, this article was also written to help you make those decisions.

Folks who helped me out in the process of writing this:
@chrismasterjohn , @angiepeacockmsw , @brookesiem and a few others in the acknowledgments with whom I’m not connected on IG.

I’m forecasting a future where getting your blood test is DIY and plug-and-play, like downloading an app onto your smartphone. This new article up on Substack is for the chemists designing those DIY test kits, but patient scientists may want a sneak peak into the future by reading the last section “Looking forward.”

Substack is linked in bio. Check it out!

I’m forecasting a future where getting your blood test is DIY and plug-and-play, like downloading an app onto your smartphone. This new article up on Substack is for the chemists designing those DIY test kits, but patient scientists may want a sneak peak into the future by reading the last section “Looking forward.”

Substack is linked in bio. Check it out!

New Substack article up! (Link in bio) this is the longest one I’ve written yet, but I hope it gives you a better chance to know me and navigate your own patient scientist journey 💪

#metabolichealth #fitness

@ethanfrenchmusic great song!

New Substack article up! (Link in bio) this is the longest one I’ve written yet, but I hope it gives you a better chance to know me and navigate your own patient scientist journey 💪

#metabolichealth #fitness

@ethanfrenchmusic great song!

This took several months, but I’m committed to thorough investigation and following journalistic etiquette the best I can as an independent science writer. If I share something with you guys, you can have peace of mind I’ll go to great lengths to get my questions answered 😂

I don’t like video editing, so this was my attempt at using an agentjc editor… it needs some improvement 🤔 but enjoy this back story to the upcoming article, where I give my honest review of the @mitometest !

Shoutout to @brookesiem for supporting this project!

This video and my article coming out next week were not sponsored by Mitome! I paid for my kit independently.

#Mitochondrialtesting #athometesting

This took several months, but I’m committed to thorough investigation and following journalistic etiquette the best I can as an independent science writer. If I share something with you guys, you can have peace of mind I’ll go to great lengths to get my questions answered 😂

I don’t like video editing, so this was my attempt at using an agentjc editor… it needs some improvement 🤔 but enjoy this back story to the upcoming article, where I give my honest review of the @mitometest !

Shoutout to @brookesiem for supporting this project!

This video and my article coming out next week were not sponsored by Mitome! I paid for my kit independently.

#Mitochondrialtesting #athometesting

New article is up, this time with a movie recommendation that features a fearless citizen scientist, @robynrdobbins , and other inspiring people.

Deep dive into cholesterol or just get your heart strings tugged at in this powerful story of agency and choice in modern medicine.

New article is up, this time with a movie recommendation that features a fearless citizen scientist, @robynrdobbins , and other inspiring people.

Deep dive into cholesterol or just get your heart strings tugged at in this powerful story of agency and choice in modern medicine.

New Substack article linked in bio. Take action before April 27. Takes 3 min to leave a comment for the FDA to say “Let people with rare genetic diseases develop their own medicines, because pharma won’t!”

New Substack article linked in bio. Take action before April 27. Takes 3 min to leave a comment for the FDA to say “Let people with rare genetic diseases develop their own medicines, because pharma won’t!”

My ideal vision for research is one where trained scientists design experiments, but collaborate with patients to inform their hypotheses and study designs.

My ideal vision for research is one where trained scientists design experiments, but collaborate with patients to inform their hypotheses and study designs.

Encountered some confusion around the optimal range setting in the CGM app. We’re using Dexcom’s Stelo app. This isn’t medical advice! Clearly! 😅

Encountered some confusion around the optimal range setting in the CGM app. We’re using Dexcom’s Stelo app. This isn’t medical advice! Clearly! 😅

3 ways I think about metabolic dysfunction from macro to micro/most fundamental level. This isn’t medical advice but I hope it’s a helpful framework to build understanding and start a convo with your clinician.

3 ways I think about metabolic dysfunction from macro to micro/most fundamental level. This isn’t medical advice but I hope it’s a helpful framework to build understanding and start a convo with your clinician.

Do I have metabolic dysfunction? Here’s a way to figure it out with a CGM, using AI as a companion in the analysis.

There are risks to hyper and hypoglycemia. Consult your clinician before making medical decisions! This is not medical advice, just educational content.

Do I have metabolic dysfunction? Here’s a way to figure it out with a CGM, using AI as a companion in the analysis.

There are risks to hyper and hypoglycemia. Consult your clinician before making medical decisions! This is not medical advice, just educational content.

Persistent symptoms or concerning labs can leave you feeling clueless and disempowered. I share how I connected the dots with my pre-diabetes diagnosis.

Part 1 was just gaining awareness and knowledge to make the connections. Part 2 will be more about the implementation, including the metabolic interventions I used.

Persistent symptoms or concerning labs can leave you feeling clueless and disempowered. I share how I connected the dots with my pre-diabetes diagnosis.

Part 1 was just gaining awareness and knowledge to make the connections. Part 2 will be more about the implementation, including the metabolic interventions I used.

Kicking off some Q&A, so you can get to know me better. I’d love for this channel to be more of a dialogue. Comment on Q&A posts with other questions you have for me:)

Kicking off some Q&A, so you can get to know me better. I’d love for this channel to be more of a dialogue. Comment on Q&A posts with other questions you have for me:)

Here’s my experience partaking in Phase 2 of 3 in the @biometric.study in Los Angeles !

This study captured my curiosities on Eastern medicine, art, and wearables (though it wasn’t a formal IRB-approved research study.) While I appreciated the initiative, a few areas could’ve used improvement:

• clearer explanation of study design, hypothesis, and how data will be used
• stronger efforts to reduce participant bias (pre-session presentations + open participant discussion likely influenced outcomes)
• more rigorous metadata collection (e.g. tracking who wore blindfolds, who sat vs laid down)
• clearer communication around participant compensation and/or what data return would look like

Showing data to participants in real time was conceptually cool, but ultimately compromised the experiment — the only true blinding was the blindfold itself 😅

Some of the marketing and graphics also sparked skepticism for me. That said, I don’t want rigidity to stifle curiosity. There’s something valuable in exploratory spaces like this, even when imperfect. These folks are starting important convos on human wellbeing and connection. 💕 ✨

…

Physician: @dr.mitch.abrams
Artist: @chaos.cura
Violinist: @nathalieboninmusic
Breathwork facilitator: @breathewithrobert
Event organizer: @marklaisure
First night venue: @thekinn.co
Study venue: @veritas.yoga

*Disclaimer: I joke that this was “woo woo.” I don’t mean any disrespect by that. I genuinely appreciate the vision and hope to see it evolve thoughtfully.

…

#biometric #hrv #eastwestmedicine

Here’s my experience partaking in Phase 2 of 3 in the @biometric.study in Los Angeles !

This study captured my curiosities on Eastern medicine, art, and wearables (though it wasn’t a formal IRB-approved research study.) While I appreciated the initiative, a few areas could’ve used improvement:

• clearer explanation of study design, hypothesis, and how data will be used
• stronger efforts to reduce participant bias (pre-session presentations + open participant discussion likely influenced outcomes)
• more rigorous metadata collection (e.g. tracking who wore blindfolds, who sat vs laid down)
• clearer communication around participant compensation and/or what data return would look like

Showing data to participants in real time was conceptually cool, but ultimately compromised the experiment — the only true blinding was the blindfold itself 😅

Some of the marketing and graphics also sparked skepticism for me. That said, I don’t want rigidity to stifle curiosity. There’s something valuable in exploratory spaces like this, even when imperfect. These folks are starting important convos on human wellbeing and connection. 💕 ✨

…

Physician: @dr.mitch.abrams
Artist: @chaos.cura
Violinist: @nathalieboninmusic
Breathwork facilitator: @breathewithrobert
Event organizer: @marklaisure
First night venue: @thekinn.co
Study venue: @veritas.yoga

*Disclaimer: I joke that this was “woo woo.” I don’t mean any disrespect by that. I genuinely appreciate the vision and hope to see it evolve thoughtfully.

…

#biometric #hrv #eastwestmedicine

I think asking for a culture would be a great way to shift UTI treatment toward precision medicine until we can get more advanced diagnostics in the clinic. I’m not sure how much extra burden this would add to our healthcare system, but my thinking is it can save wasted resources down the line. I didn’t double check the medical guidelines on this topic. This is just my recollection of what I learned from my internship years back and my ideas for how we can better go about antibiotic prescribing. Obviously, consult your doctor! I’m not a physician and I’m not giving medical advice. Just offering ideas to explore with your doctor!

#uti #antimicrobialresistance

I think asking for a culture would be a great way to shift UTI treatment toward precision medicine until we can get more advanced diagnostics in the clinic. I’m not sure how much extra burden this would add to our healthcare system, but my thinking is it can save wasted resources down the line. I didn’t double check the medical guidelines on this topic. This is just my recollection of what I learned from my internship years back and my ideas for how we can better go about antibiotic prescribing. Obviously, consult your doctor! I’m not a physician and I’m not giving medical advice. Just offering ideas to explore with your doctor!

#uti #antimicrobialresistance

Since this would prob lead to a probiotic for lowering cholesterol, rather than a pharmaceutical drug, it prob won’t get big pharma $$ for funding. 💵 💰 So it’s up to us, the patient scientists, to back this up!! 💪

#cholesterol #statin

Since this would prob lead to a probiotic for lowering cholesterol, rather than a pharmaceutical drug, it prob won’t get big pharma $$ for funding. 💵 💰 So it’s up to us, the patient scientists, to back this up!! 💪

#cholesterol #statin

🩸😮‍💨Tips for how to overcome fainting in blood draws are up on the blog!

#blooddraw #vasovagalsyncope #microsampling

🩸😮‍💨Tips for how to overcome fainting in blood draws are up on the blog!

#blooddraw #vasovagalsyncope #microsampling

🎃 🍁 Pumpkin spice and cinnamon season is upon us. With that theme, I bring you this post 😝 Search “vaginal microbiome” in my website to find the corresponding article with:
📖 explainers on the vaginal microbiome
🫵how testing may help you
📝what my test results were and how they can help you interpret yours

This post wasn’t sponsored. I’m just sharing cool science I’ve had the privilege of getting to work on and participate in.

#womenshealth #vaginalhealth #vaginalmicrobiome #vaginalmicrobiometest

🎃 🍁 Pumpkin spice and cinnamon season is upon us. With that theme, I bring you this post 😝 Search “vaginal microbiome” in my website to find the corresponding article with:
📖 explainers on the vaginal microbiome
🫵how testing may help you
📝what my test results were and how they can help you interpret yours

This post wasn’t sponsored. I’m just sharing cool science I’ve had the privilege of getting to work on and participate in.

#womenshealth #vaginalhealth #vaginalmicrobiome #vaginalmicrobiometest

What makes you trust a scientific recommendation?
A perfect randomized control trial (RCT) could earn your trust.
Or maybe scientific consensus across lots of studies would make you feel better.
For me, it’s about the scientists as people. I want to know who they are, their motivations, their biases. Story and vibes is not a very scientific metric, but it’s how I feel as a patient and a person.
Comment with things that earn your trust from scientists and medical practitioners, whether it’s a real example or something you wish was done…

#maha

What makes you trust a scientific recommendation?
A perfect randomized control trial (RCT) could earn your trust.
Or maybe scientific consensus across lots of studies would make you feel better.
For me, it’s about the scientists as people. I want to know who they are, their motivations, their biases. Story and vibes is not a very scientific metric, but it’s how I feel as a patient and a person.
Comment with things that earn your trust from scientists and medical practitioners, whether it’s a real example or something you wish was done…

#maha

So you found a research study…. Are you gonna join? Do you trust it? Is it worth it?

Follow this account for content that helps you feel confident about those decisions. Know your rights in research— when to join a study and when to say no!

If you’re considering a study and unsure whether to join, send it over to me and we can figure it out together:)

So you found a research study…. Are you gonna join? Do you trust it? Is it worth it?

Follow this account for content that helps you feel confident about those decisions. Know your rights in research— when to join a study and when to say no!

If you’re considering a study and unsure whether to join, send it over to me and we can figure it out together:)

✋If you’re sharing a study that I haven’t yet posted, DM me first before tagging me in a post.

Whether it’s positive sharing for others to join or cautionary to warn others, let me know!

I likely won’t repost until we can chat first 🙃

…

Poll: What studies are you looking to join?

✋If you’re sharing a study that I haven’t yet posted, DM me first before tagging me in a post.

Whether it’s positive sharing for others to join or cautionary to warn others, let me know!

I likely won’t repost until we can chat first 🙃

…

Poll: What studies are you looking to join?

✋ Stop throwing away your tampons! Instead, use them for research!

More info on the science and links to similar studies are on my website.

#menstruationmatters #womenshealth #pcos #tampons

✋ Stop throwing away your tampons! Instead, use them for research!

More info on the science and links to similar studies are on my website.

#menstruationmatters #womenshealth #pcos #tampons

Did you know there is a urinary microbiome?

You can learn about yours by joining research!

I’m trying it out. If you want to join me, search “UTI” on my website (linked in bio).*

*You don’t need to have UTIs to join the study. They need healthy controls, too!

*This isn’t a sponsored post. I’m just sharing cool research I do as a #patientscientist 🤓

…

#UTI #microbiome #femalehealth #clinicalresearch #microsampling #urine

Did you know there is a urinary microbiome?

You can learn about yours by joining research!

I’m trying it out. If you want to join me, search “UTI” on my website (linked in bio).*

*You don’t need to have UTIs to join the study. They need healthy controls, too!

*This isn’t a sponsored post. I’m just sharing cool research I do as a #patientscientist 🤓

…

#UTI #microbiome #femalehealth #clinicalresearch #microsampling #urine

📝Research Consent Forms: Key Tips and Red Flags 🚩

Consent forms can be overwhelming! Learn crucial tips and what to watch out for before signing. Highlights include:
-data return rights
-identifying incidental findings, understanding study sponsorship
-data privacy, and
-recognizing potential conflicts of interest.

💪 Get empowered to ask the right questions and demand transparency with expert advice on navigating consent forms effectively.

#patientsafety #bioethics #patientscientist #patientadvocate #clinicaltrials #consentforms #citizenscience

📝Research Consent Forms: Key Tips and Red Flags 🚩

Consent forms can be overwhelming! Learn crucial tips and what to watch out for before signing. Highlights include:
-data return rights
-identifying incidental findings, understanding study sponsorship
-data privacy, and
-recognizing potential conflicts of interest.

💪 Get empowered to ask the right questions and demand transparency with expert advice on navigating consent forms effectively.

#patientsafety #bioethics #patientscientist #patientadvocate #clinicaltrials #consentforms #citizenscience

Welcome to The Patient Scientist channel!

I studied Cell Biology at UC Berkeley 🐻 , did research in labs 🧪 , & work in biotech 🧬. Not enough patients have the knowledge I’ve come across, so I’m here to share it with you:)

I’ll share
🧬 research study opportunities you can join me in
🧬 knowledge to help you know your rights in research
🧬 blog posts alongside videos (link in bio!)

…

#clinicaltrials #studyparticipant #patientscientist

Welcome to The Patient Scientist channel!

I studied Cell Biology at UC Berkeley 🐻 , did research in labs 🧪 , & work in biotech 🧬. Not enough patients have the knowledge I’ve come across, so I’m here to share it with you:)

I’ll share
🧬 research study opportunities you can join me in
🧬 knowledge to help you know your rights in research
🧬 blog posts alongside videos (link in bio!)

…

#clinicaltrials #studyparticipant #patientscientist

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@thepatientscientist

Watch me on Youtube

Read my Writing on Substack

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Dig through the Archives

ImYoo Launches Patient-enabled Lupus Study to Track Steroid Tapering Outside the Clinic

ImYoo Launches Patient-enabled Lupus Study to Track Steroid Tapering Outside the Clinic

ImYoo Launches Patient-enabled Lupus Study to Track Steroid Tapering Outside the Clinic

ImYoo Launches Patient-enabled Lupus Study to Track Steroid Tapering Outside the Clinic

From Needle Phobia to Collecting my own Blood

From Needle Phobia to Collecting my own Blood

From Needle Phobia to Collecting my own Blood

Tips to overcome fainting from venous blood draws and microsampling as an alternative to enable regular blood testing

Vaginal Microbiome Sequencing

Vaginal Microbiome Sequencing

Vaginal Microbiome Sequencing

"23andMe for your cooch" 🫢 An explanation of the vaginal microbiome and how to interpret test results In 2019, I was both working on and...

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